Wednesday, November 9, 2011

Second Opinion & Mother/Father's Intuition

Recently I had requested a second opinion referral from TriWest for Noah to be seen by a pediatric opthamologist because his current eye doctor had been trying to get us to go the surgery route to fix his alternating isotropia, (crossing of both eyes).  I am so thankful the change was approved and the doctor we switched to is more knowledgeable.  Noah was a complete brat the first appointment, usually he is pretty well behaved for the eye doctor so that had me a bit concerned about my decision, but today he had his second appointment which consisted of eye dilation and measurements and it was concluded that Noah has been wearing a much stronger lense in his glasses then originally needed.  We have been told all along that he needed to ultimately be in +5.50 lenses and we never were able to get there because of his aversion to the glasses.  We had finally settled on +4.00 lenses for some time and still noticed how much his eyes crossed with and without glasses.  So all along we have been forcing his glasses on him and they were the complete wrong prescription!  The scariest part of this all is that the glasses he has been wearing might have caused more damage then not.  He was slated to have corrective eye muscle surgery in October but Tim and I both agreed something did not seem right about it all and we cancelled the surgery.  Thank goodness we did, the surgery would have been done with all the wrong measurements because his actual eye glass prescription was wrong!  The second opinion doctor wrote a letter to Noah's pediatrician as well as one for me to present to the original eye doctor to hopefully recoup our money we spent on new lenses and glass.  


Noah will certainly have to have eye surgery in the coming months, but for now is to go two months without glasses to help the brain and eyes communicate correctly, or  as correctly as they know how to with each other.  We will have a better idea in that time frame if all the back and forth with his previous eye care caused damage.  We will not even attempt glasses again until after he has a corrective eye muscle surgery to once and for all have him in the correct prescription.


We also got word this week that Micah's yearly kidney ultrasound looked good.  Both kidney's are a bit small, especially the left kidney which is the abnormal one.  His right kidney did not really grow either but this has not been a record growth year for Micah on the growth charts.  We are hoping for more growth on the right side on next years ultrasound.  To this day it is so strange to mark the kidney disease box on health forms for Micah because to look, listen or see him you really would have NO clue he has a kidney disorder.  He also got cleared recently to be able to play contact sports so hopefully we can figure what sport suits him best in the near future.    

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